I’m through accepting limits
‘Cause someone says they’re so.
Some things I cannot change
But ’til I try I’ll never know.
(Defying Gravity, Wicked)
What is this blog about?
I intend for this blog to be about the things I cannot change, and how I can learn to accept them. And for it to be about how I can try to change the things within my control. But mostly I intend for it to be about refusing to accept limitations that others have imposed – on me, on my family, on the world around me.
I don’t know if anyone will read this, and I don’t know if what I write will be worth reading. But, in the words of Elphaba: “It’s time to trust my instincts, close my eyes and leap!”
I am here to read! 🙂 Our stories are similar, I fighted for so many years to get a diagnosis, because I KNOW something was wrong. It took 24 years to convince the doctors…
I totally wanna read you…somewhere in your story I could see myself.
Thank you Rashmi, I do hope you find my blog of use or interest x
I just came across your site by following a link from The National Autistic Society. Thank you for writing such an inspiring blog. I have been very ill with ME and various auto immune illnesses for the past twenty years, and I have a wonderful and exhausting teenage son with Aspergers – so I really get where you are coming from. We both have very colourful lives!
Despite having received my little boys ASD diagnosis recently, I am ashamed to say how ignorant I have been with accepting his behavioural aversion. It wasn’t until I read your blog about the special performance of the lion ling
that the autistic character traits I have been reading about for so long, came to life. You made these traits human and ‘real’ – from the arm flapping to thec inherent need to know and expect certain events. It does sound egotistical but I have felt for so long that these traits were exclusively my little boys and not a reflection of ASD. I have felt like the mother of the naughty,out of control child for so long that reading this story and experiencing this show vicariously through your eyes has changed my own!Thank you! I will be involving myself in the autism community more because of this!
This is one of my favourite comments ever left on my blog! Good luck in your continued journey with your little boy and do let me know if I can be of any help x
So glad to hear your entire CVID story. I anticipate starting IVIG soon and have been combing the Internet looking for stories that go beyond the first infusion. I am happy to hear that people do feel better on IVIG.
So many parts of your story are mine too. I couldnt have written it better though and it helps reading you. Knowing that there are no limits just we have to adapt to the circumstance.
Thanks for sharing!